Ukuze ufunde kabanzi mayelana ne i-cystic fibrosis, I-Passeportsanté.net inikeza ukukhethwa kwezinhlangano nezingosi zikahulumeni ezibhekene nesihloko se-cystic fibrosis. Uzokwazi ukuthola khona Ulwazi Olwengeziwe nokuxhumana nemiphakathi noma amaqembu okusekelana okukuvumela ukuthi ufunde kabanzi ngalesi sifo.

iziNdawo

France

Ukushaya i-cystic fibrosis

Idalwe ngo-1965, le nhlangano ihlose ukusekela iziguli nemindeni yazo ezindaweni ezi-4: ukwelapha, ukunakekela, ukuphila kangcono, kanye nokuqwashisa abantu. Iphinde isekele ucwaningo.

UGregory Lemarchal Association

Le nhlangano yasungulwa ngo-2007 ngemva kokushona kweciko uGrégory Lamarchal owayephethwe i-cystic fibrosis, le nhlangano ihlose ukuthuthukisa ukunethezeka kanye nezinga lempilo yeziguli futhi iqwashise ngokunikela ngezitho zomzimba.

Association-gregorylemarchal.org

Canada

I-Canadian Cystic Fibrosis Foundation

Yasungulwa ngo-1960, lesi sisekelo sixhasa ucwaningo nge-cystic fibrosis. Umgomo wesisekelo uwukunikeza izinsiza nolwazi lokwelapha nokuphatha kangcono lesi sifo. Izincwajana ziyatholakala ku-inthanethi noma nge-oda, ngesiNgisi nangesiFulentshi cystic fibrosis.ca

I-Cystic Fibrosis yaseQuebec

Le nhlangano ihlose ukusiza abantu abane-cystic fibrosis e-Quebec, ngokuvumelana ne-Canadian Cystic Fibrosis Foundation.

aqfk.qc.ca

IKomidi Lesifundazwe Labantu Abadala abane-Cystic Fibrosis

Idalwe ngo-1985, iKomidi Lesifundazwe Labantu Abadala Be-Cystic Fibrosis (CPAFK) lihlanganisa ndawonye abantu abadala baseQuebec abangaphezu kuka-500 abane-cystic fibrosis. Leli ikomidi lokusekela eliphinde lihlose ukukhuthaza nokuvikela amalungelo nezintshisekelo zabantu abadala abane-cystic fibrosis e-Quebec.

cpafk.qc.ca

Umhlahlandlela Wezempilo kahulumeni waseQuebec

Ukuze ufunde kabanzi ngezidakamizwa: ungazithatha kanjani, yikuphi ukuphikisana nokusebenzisana okungenzeka, njll.

www.asibuyile.gouv.qc.ca

Belgium

I-Belgian Association for the Fight against Cystic Fibrosis

muco.be

Swiss

I-Swiss Society for Cystic Fibrosis (SFCH)

cfch.ch

I-united states

I-Cystic Fibrosis Foundation

www.cff.org