Okuqukethwe
Ama-dystrophies emisipha - Amasayithi wentshisekelo nombono kadokotela wethu
Ukuze ufunde kabanzi mayelana ama-dystrophies emisiphas, IPasseportsanté.net inikeza izinhlangano ezikhethiwe namasayithi kahulumeni. Uzokwazi ukuthola lapho Ulwazi Olwengeziwe nokuxhumana nemiphakathi noma amaqembu okusekelana okukuvumela ukuthi ufunde kabanzi ngalesi sifo.
iziNdawo
France
I-French Association Against Myopathies (AFM)
Inhlangano eyakhiwe ngo-1958 yiziguli nezihlobo zeziguli, ngenhloso yokwelapha izifo zemithambo yegazi nokunciphisa ukukhubazeka kwalabo abathintekile.
www.afm-telethon.fr
IZINTANDANE
Ingosi yesifo esingandile
www.intandane.Fr /
Canada
I-Muscular Dystrophy eCanada
Inhlangano inhloso yayo ukuqhubekisela phambili ucwaningo ngezifo ze-neuromuscular nokuxhasa iziguli nemindeni yazo.
www.imisipha.ca
I-united states
Inhlangano Ye-Muscular Dystrophy
www.imdausa.org
Umbono kadokotela
Njengengxenye yendlela yekhwalithi yayo, iPasseportsanté.net ikumema ukuthi uthole umbono wochwepheshe bezempilo. UDkt Jacques Allard, udokotela ojwayelekile, ukukunikeza umbono wakhe nge ukuqina kwemisipha :
Iseluleko sami senzelwe abazali ngokukhathazeka ngokukhula kwengane yabo. Uma ingane yakho inenkinga yokuhamba, ukugijima, ukwehla phansi noma ukugibela izitebhisi, kubonakala kungavamile noma ukuwa njalo, kungcono ukubonana nodokotela, njengoba lezi zimo zingase zibe izimpawu zokuqala ze-muscular dystrophy. . Lapho sekutholakele, ukwelashwa nokuvuselelwa kungasiza ekudambiseni izimpawu futhi kubambezele ukukhula kwesifo. Okokugcina, ngincoma futhi ukuthintana nodokotela onguchwepheshe kwezofuzo. Dr UJacques Allard MD FCMFC |