« Ngaba nokukhulelwa kwami kokuqala kahle, ngaphandle kokuhlanza okungayeki kuze kube yinyanga yesithupha yokukhulelwa.
Ngenza zonke izivivinyo ezijwayelekile (ukuhlolwa kwegazi, ama-ultrasounds) futhi ngaze ngathola ama-ultrasound njalo ngenyanga.
Ngangineminyaka engu-22 ubudala, futhi umlingani wami oneminyaka engu-26 ubudala, futhi ngangikude kakhulu nokucabanga konke okwakuzokwenzeka… Kodwa ngesikhathi sokukhulelwa kwami, kwakukhona into eyodwa kuphela eyangethusa, engayenza. ngesaba ekujuleni kwami ngaphandle kwesizathu esithile ngenxa yemiphumela yami yokuhlolwa “evamile”.
NgoJulayi 15, 2016, ngo-23:58 ntambama, ngabeletha indodana yami uGabriel emtholampilo oseduze nasekhaya. Mina nozakwethu sasijabule kakhulu, isimanga sethu esincane esasilindelwe isikhathi eside sase sifikile, ezandleni zethu.
Ngakusasa ekuseni, konke kwashintsha.
Udokotela wezingane ezibelethisayo wangitshela ukuthi anginalutho, ngaphandle kokuthatha noma yimaphi amagilavu, noma ngisho nokulungiswa ukuze ngilinde umlingani wami afike: “Ingane yakho ngokuqinisekile ine-Down's syndrome. Sizokwenza i-karyotype ukuze siqiniseke. Esho ephuma enkulisa ngoba kumele ayobona indodakazi yakhe. Ungishiya ngidangele, ngingedwa, ngikhungathekile ngezindaba, ngikhala zonke izinyembezi emzimbeni wami.
Ekhanda lami, ngangizibuza: ngizomemezela kanjani kumlingani wami? Wayesendleleni ezosibona.
Kungani thina? Kungani ndodana yami? Ngimncane ngina 22 kuphela akwenzeki, ngiphakathi kwephupho elibi, ngizovuka noma inini, ngisekupheleni kwentambo yami, ngizitshela ukuthi ngeke aphumelele!
Kungenzeka kanjani ukuthi ochwepheshe bezempilo bangaboni lutho… Ngangithukuthelele uMhlaba wonke, ngangiduke ngokuphelele.
Umngane wami omkhulu ufika ewodini lababelethayo, ejabule kakhulu kimi. Uyaqala ukwazi ngalento: engibona ngihlengezela izinyembezi, akhathazeke futhi angibuze ukuthi kwenzakalani. Angikwazanga ukulinda ukufika kukababa: Ngimtshela izindaba ezimbi, futhi uyanganga, engakholelwa futhi.
Ubaba ufika ngemva kwalokho, asishiye sobabili. Ngokusobala, wenza konke ngokuphelele ukuze angaqhekeki phambi kwami. Uyangeseka futhi ungitshela ukuthi konke kuzolunga, uyangiqinisa idolo. Aphumele ngaphandle ukuze ahlanze ingqondo imizuzu embalwa bese ekhala ngokuphenduka kwakhe.
Angikwazanga ukulinda, ngikhiphe umntanami kulo mtholampilo futhi ekugcineni ngigoduke, ukuze siqhubeke nempilo yethu entsha ndawonye, futhi sizame ukubekela eceleni lesi sigaba esibi ekuphileni futhi sijabulele izikhathi ezimnandi nengelosi yethu encane.
Emasontweni amathathu kamuva, isinqumo siyawa, uGabriel une-Down's syndrome. Besisola, kodwa ukushaqeka kusekhona. Ngangibuzile ku-inthanethi mayelana nezinyathelo okufanele zithathwe, ngoba odokotela basivumela ukuba siye emvelweni ngaphandle kokusitshela lutho ...
Ama-ultrasounds okulawula amaningi: inhliziyo, izinso, ama-fontanelles ...
Ukuhlolwa kwegazi okuningi nakho, izinqubo ne-MDPH (indlu yomnyango yabantu abakhubazekile) kanye Nezokuphepha Komphakathi.
Isibhakabhaka siwela emakhanda ethu futhi: UGabriel unenkinga yenhliziyo (lokhu kuthinta cishe amaphesenti angu-40 abantu abane-Down's syndrome), une-VIC enkulu (ukuxhumana kwe-intra-ventricular), kanye ne-CIA encane. (ukuxhumana ezindlebeni). Ezinyangeni ezintathu nengxenye, kwadingeka ahlinzwe inhliziyo evulekile e-Necker ukuze agcwalise "izimbobo", ukuze ekugcineni akhuluphale futhi aphefumule ngokujwayelekile ngaphandle kokuzwa sengathi ugijima i-marathon enganqamuki. Ngenhlanhla ukuhlinzwa kwaba yimpumelelo.
Zincane futhi izivivinyo eziningi okufanele ubhekane nazo! Indodana yami “iyiqhawe”. Ukuhlinzwa kwakhe kwasivumela ukuba sibeke izinto ngombono, sasimesaba kakhulu, sisaba ukulahlekelwa nguye. Kodokotela abahlinzayo kuwukuhlinzwa okuvamile, kodwa kithina bazali abasebasha, kwakuyindaba ehluke ngokuphelele.
Namuhla, uGabriel unezinyanga ezingu-16 ubudala, uyingane ejabule kakhulu futhi ejabule, usigcwalisa ngenjabulo. Ukuphila akulula ngaso sonke isikhathi, yiqiniso, phakathi kokuqokwa kwezokwelapha kwamasonto onke (i-physiotherapist, i-psychomotor therapist, i-repest yenkulumo, udokotela wezingane, njll.) kanye neqiniso lokuthi ugula ngaso sonke isikhathi (i-bronchitis ephindaphindiwe, i-bronchiolitis, i-pneumopathies) ngenxa yokuncipha kwayo kakhulu. izinga lokuzivikela komzimba.
Kodwa uyasibuyisela. Siyaqaphela ukuthi empilweni, impilo iyona ebaluleke kakhulu emkhayeni. Kufanele wazi indlela yokwazisa lokho onakho kanye nezinjabulo ezilula ekuphileni. Indodana yami isinika isifundo esihle kakhulu empilweni. Kuzodingeka silwele yonke into naye, ukuze athuthuke kahle ngangokunokwenzeka, futhi siyohlala njalo, ngoba ufanelwe, njengazo zonke ezinye izingane. “
UMéghane, umama kaGabriel