Abantu abaningi abane-autism babecabanga ukuthi babi izimpilo zabo zonke baze baxilongwa ngendlela efanele. Yiziphi izici zokwamukela iqiniso ngokugula kwakho lapho usumdala futhi kungani “kungcono sekwephuzile kunanini ngaphambili”?
Ngezinye izikhathi ukucaca ekuqondeni izici zomuntu azalwa nazo kususa umthwalo osindayo kumuntu. Okuthile okwakungenagama futhi kwaletha ubunzima obuningi ekuphileni nokuxhumana nabanye, kungase kusekelwe ngezizathu zezokwelapha. Ukwazi ngabo, kokubili umuntu kanye nezihlobo zakhe baqala ukuzulazula isimo futhi baqonde indlela yokwakha ubudlelwano nezwe langaphandle - futhi ngezinye izikhathi nengaphakathi.
Enye indlela
Umngane wami ubelokhu eyinqaba njengoba besho. Abangane ngisho nezihlobo babembheka njengomuntu ongenazwelo, ongenamusa futhi ovilaphayo. Ngaphandle kokuhlangabezana ngokuqondile nokubonakaliswa okunjalo kobuntu bakhe, cishe, njengabanye, ngakhumbula ukucwaswa ayebekwe phezu kwakhe yilabo ababekulindele angakufezanga.
Futhi ngemva kweminyaka ecishe ibe ngu-20 ngimazi, ngemva kweminyaka eminingana ngifunda isayensi yezokusebenza kwengqondo nokufunda izincwadi eziningi ngesihloko, ngafikelwa umuzwa othi: mhlawumbe une-ASD - i-autism spectrum disorder. I-Asperger's Syndrome noma enye into - vele, kwakungewona umsebenzi wami noma ilungelo lami ukwenza ukuxilongwa. Kodwa lo mbono wasikisela indlela yokwakha ukuxhumana naye ngenkathi usebenza kuphrojekthi ehlangene. Futhi konke kwahamba kahle. Angivumelani nanoma yikuphi ukuhlaziya okungekuhle anikezwa kona, futhi ngizwelana nomuntu okufanele aphile nomuzwa wokuthi “akanjalo.”
Ilebula impilo yonke
Abantu abaningi abangaphezu kweminyaka engama-50 abatholakala bene-autism ekupheleni kwezimpilo zabo bakhule bekholelwa ukuthi babi. Lezi yimiphumela yocwaningo olusha oluvela eNyuvesi yase-Anglia Ruskin, olushicilelwe kumagazini i-Health Psychology and Behavioral Medicine. Iqembu labacwaningi basenyuvesi laxoxa nabantu abayisishiyagalolunye abaneminyaka engu-52 kuya ku-54. Abanye babahlanganyeli bathi ebuntwaneni babengenabo abangane, babezizwa behlukanisiwe. Njengabantu abadala, babengaqondi ukuthi kungani abantu bebaphatha ngendlela ehluke kangaka. Abanye baye belashelwa ukukhathazeka nokucindezeleka.
UDkt. Steven Stagg, uMfundisi Omkhulu wePsychology e-Anglia Ruskin University nombhali oholayo wocwaningo, uthe: “Ngithinteke kakhulu ngesinye sezici ezavela ezingxoxweni nababambe iqhaza kuphrojekthi. Iqiniso wukuthi laba bantu bakhule bezitshela ukuthi babi. Babezibiza ngabantu abangabazi futhi “hhayi abantu.” Kunzima kakhulu ukuphila naye.”
Lolu wucwaningo lokuqala lwalolu hlobo lokuhlola isimo sokuxilongwa kwe-midlife. Ososayensi nabo bakholelwa ukuthi kungaletha izinzuzo ezinkulu kubantu. Abahlanganyeli bavame ukuyichaza njengesikhathi “se-eureka” esibalethele ukukhululeka. Ukuqonda okujulile nokucacile kwezici zabo kwabavumela ukuba baqonde ukuthi kungani abanye abantu besabela kabi kubo.
Ukuthuthukisa ukwazi ukufunda nokubhala kongoti
Kwezinye izindawo, isayensi yengqondo ithuthuka ngokushesha kangangokuthi namuhla kunezizukulwane zonke zabantu abakhule ngesikhathi lapho i-autism yayingaziwa kahle. Manje ochwepheshe banamathuba amahle nolwazi ekuboneni ukuphazamiseka kwe-autism spectrum, futhi lokhu kwenza kube nokwenzeka ukuxilonga abantu abasha kuphela, kodwa nalabo abaye baphila isikhathi esiningi sokuphila kwabo nomuzwa wokungajwayelekile noma ukuhlukaniswa nomphakathi.
Ababhali bocwaningo bayaqiniseka ukuthi kuyadingeka ukufundisa labo abangasiza abantu abane ASD, noma okungenani badluliselwe kuchwepheshe. “Odokotela nabasebenzi bezempilo kufanele bazazi kahle izimpawu ezingaba khona ze-autism. Ngokuvamile abantu kutholakala ukuthi banokucindezeleka, ukukhathazeka noma okunye ukuphazamiseka kwengqondo, futhi i-autism ayikho kulolu hlu, "kusho ososayensi.
Baphinde baphawula ukuthi kusamele wenziwe umsebenzi wokweseka abantu abadala kanye nabantu abadala uma sebetholakele. Izinguquko ezinjalo olwazini ngaye siqu nezici zomuntu ezingokwengqondo zingaba “ukunyakaziswa” okuphawulekayo kumuntu omdala, ovuthiwe. Futhi, kanye nokukhululeka okulethwa ukuqonda, lapho ebheka emuva ekuphileni kwakhe, angaba neminye imizwelo eminingi ukwelapha kwengqondo okungasiza ukubhekana nayo.
Lesi sihloko sisekelwe ocwaningweni olushicilelwe kumagazini i-Health Psychology and Behavioral Medicine.