Okuqukethwe
Lapho ngizwa ngokuzalwa kwendodakazi yami, ngaphuza i-whisky. Kwaze kwashaya u-9 ekuseni nokushaqeka kwalesi simemezelo ngibhekene neshwa likaMina, umkami, angisitholanga esinye isisombululo ngaphandle kokuphuma ewodini lababelethayo. Ngasho amagama amabili noma amathathu ayisiphukuphuku, “Ungakhathazeki, sizoyilungisa”, ngasuka ngesivinini ngaya endaweni yokucima ukoma...
Ngabe sengizidonsa. Nganginamadodana amabili, inkosikazi ekhonzwayo, nesidingo esiphuthumayo sokuba ubaba olindelwe, lowo owayezothola ikhambi “lenkinga” kaYasmine omncane. Ingane yethu yayine-Down's syndrome. UMina wayesanda kungitshela ngesihluku. Lezi zindaba zazidluliselwe kuye emizuzwini embalwa ngaphambili ngodokotela, kulesi sibhedlela sokubeletha eCasablanca. Akube njalo, yena, mina nomndeni wakithi obumbene sizokwazi ukukhulisa le ngane ehlukile.
Umgomo wethu: ukukhulisa u-Yasmine njengazo zonke izingane
Emehlweni abanye, i-Down syndrome iwukukhubazeka, futhi amanye amalungu omndeni wami aba ngabokuqala abangasamukeli. Kodwa thina abahlanu, sasikwazi ukwenza! Ngempela, kubafowabo ababili, uYasmine wayengudadewabo omncane abathandayo, ukuze abavikele. Sakhetha ukuthi singabatsheli ngokukhubazeka kwakhe. UMina wayekhathazekile ngokuthi sikhulisa indodakazi yethu njengengane “evamile”. Futhi wayeqinisile. Asizange siyichazele lutho indodakazi yethu. Uma ngezinye izikhathi, ngokusobala, ukushintsha kwemizwa yakhe noma isihluku sakhe simehlukanisa nezinye izingane, besihlale sifisa ukumenza alandele inkambo evamile. Ekhaya sasidlala sonke, siphume siye ezindaweni zokudlela siye eholidini. Njengoba sivikelekile emfeceni womkhaya wakithi, akekho owayezifaka engozini yokumlimaza noma ukumbheka ngendlela exakile, futhi sasikuthanda ukuphila kanje phakathi kwethu, sinomuzwa wokumvikela njengoba kufanele. I-trisomy yengane ingabangela imindeni eminingi ukuthi iqhume, kodwa hhayi eyethu. Kunalokho, u-Yasmine ubelokhu eyingcina phakathi kwethu sonke.
U-Yasmine wamukelwa enkulisa. Umongo wefilosofi yethu wawuwukuthi wayenamathuba afanayo nabafowabo. Waqala impilo yakhe yokuxhumana nabantu ngendlela engcono kakhulu. Wayekwazi, ngejubane lakhe, ukuhlanganisa izingcezu zokuqala zephazili noma ukucula izingoma. Esizwa ukwelapha ngenkulumo kanye namakhono e-psychomotor, u-Yasmine waphila njengamaqabane akhe, ehambisana nenqubekelaphambili yakhe. Waqala ukucasuka abafowabo, sagcina sesibachazela ngokukhubazeka okumphethe, ngaphandle kokungena imininingwane. Ngakho babonisa ukubekezela. Ephendula, u-Yasmine wakhombisa ukuphendula okuningi. I-Down's syndrome ayikwenzi ingane ihluke kangaka, futhi eyethu ngokushesha, njenganoma yimuphi umntwana olingana nayo, yayazi ukuthi ingathatha kanjani indawo yayo noma iyifune, futhi ithuthukise ubunjalo bayo kanye nobuntu bayo obuhle.
Isikhathi sokuqala sokufunda
Kwase kuyisikhathi sokufunda, ukubhala, ukubala ... Izikhungo ezikhethekile bezingafaneleki ku-Yasmine. Wahlushwa ukuba seqenjini labantu “abanjengaye” futhi wazizwa engakhululekile, ngakho sabheka isikole esizimele “sakudala” esizimisele ukumamukela. NguMina lowo owayemsiza ekhaya ukuthi abe level. Kwamthatha isikhathi eside kunabanye ukufunda, kusobala. Ngakho bobabili basebenza kwaze kwaba sebusuku kakhulu. Ukuhlanganisa izinto kudinga umsebenzi owengeziwe enganeni ene-Down syndrome, kodwa indodakazi yethu yakwazi ukuba umfundi okahle phakathi nayo yonke imfundo yayo yasesikoleni samabanga aphansi. Kungaleso sikhathi lapho saqonda khona ukuthi wayeyimbangi. Ukusimangaza, ukuba ukuziqhenya kwethu, yilokho okumkhuthazayo.
Ekolishi, ubungane kancane kancane baba nzima. U-Yasmine usephenduke i-bulimic. Ukucasuka kwentsha, isidingo sayo sokuvala isikhala esasimququda, konke lokhu kwazibonakalisa kuye njengokungakhululeki okukhulu. Abangane bakhe basesikoleni samabanga aphansi, bekhumbula ukushintshashintsha kwemizwa yakhe noma ukukhuphuka kolaka, bamvimbela, futhi wayehlushwa yikho. Abampofu sebezame konke, ngisho nokuthenga ubungane babo namaswidi, kwaba nhlanga zimuka nomoya. Lapho babengamhleki babembalekela. Okubi kakhulu kwaba lapho ehlanganisa iminyaka engu-17, lapho ememela ikilasi lonke ngosuku lwakhe lokuzalwa futhi kwafika amantombazane ambalwa. Ngemva kwesikhashana, bahamba edolobheni, bavimbela u-Yasmine ukuba abajoyine. Uthole ukuthi “umuntu we-Down's syndrome uhlala yedwa”.
Senze iphutha lokungachazi ngokwanele mayelana nomehluko wawo: mhlawumbe wayengakuqonda kangcono futhi abhekane kangcono nokusabela kwabanye. Intombazane empofu yayicindezelekile ngenxa yokungakwazi ukuhleka nezingane ezilingana nayo. Ukudabuka kwakhe kugcine kunomthelela ongemuhle emiphumeleni yakhe yesikole, sazibuza ukuthi ngabe asizange senze ihaba kancane - okusho ukuthi, sibuze kakhulu.
Futhi bac, nge honours!
Sabe sesiphendukela eqinisweni. Esikhundleni sokukufihla lokho futhi atshele indodakazi yethu ukuthi “yayihlukile,” uMina wayichazela ukuthi siyini i-Down syndrome. Kunokuba kumethuse, lokhu kuvezwa kwamvusa imibuzo eminingi. Ekugcineni waqonda ukuthi kungani ayezizwa ehluke kangaka, futhi wafisa ukwazi okwengeziwe. Nguye owangifundisa ukuhunyushwa kwegama elithi “trisomy 21” olimini lwesi-Arabhu.
Futhi-ke, u-Yasmine waziphonsa phansi ekulungiseni i-baccalaureate yakhe. Sathola usizo kothisha abazimele, futhi uMina, ngokukhulu ukucophelela, wahamba naye ezibuyekezweni zakhe. U-Yasmine wayefuna ukukhulisa umgomo, futhi wakwenza: isilinganiso esingu-12,39, Khuluma ngokwanele. Ungumfundi wokuqala one-Down's syndrome e-Morocco ukuthola i-baccalaureate yakhe! Ngokushesha yazungeza izwe, futhi u-Yasmine wayethanda lokhu kuthandwa okuncane. Kube nomcimbi wokumbongela eCasablanca. Emakrofoni, wayenethezekile futhi enembile. Khona-ke, inkosi yammema ukuba ayotusa impumelelo yakhe. Phambi kwakhe akazange anciphe. Sasiziqhenya, kodwa kakade sase sicabanga ngempi entsha, yezifundo zasenyuvesi. Isikole Sokubusa Nezomnotho e-Rabat sivumile ukusinikeza ithuba.
Namuhla, uphupha ngokusebenza, okuba “ngowesifazane wezebhizinisi”. UMina wamfaka eduze kwesikole sakhe futhi wamfundisa ukugcina ibhajethi yakhe. Ekuqaleni, isizungu sasimcindezela kakhulu, kodwa asizange sivume futhi wahlala eRabat. Sazibongela ngalesi sinqumo, esiqale sasiphula izinhliziyo. Namuhla indodakazi yethu iyaphuma, inabangane. Ngisho noma eqhubeka nokubonisa ulaka lapho ezizwa engafaneleki kuye, u-Yasmine uyakwazi ukubonisa ubumbano. Iphethe umyalezo ogcwele ithemba: kusezibalo kuphela lapho umehluko uwukukhipha!