Okuqukethwe
U-Eglantine Eméyé: “USamy akayona ingane njengabanye”
/ Ukuzalwa kwakhe
Umuhle kakhulu, ingane enhle elala kakhulu, ezolile, e-chinene ukuze abantu bazi ukuthi ilambile. Ngikuthola uphelele. Ngezinye izikhathi ngihambisa i-pacifier emlonyeni wakho, ukuze ngidlale, ngenza sengathi ngiyayisusa kuwe, futhi kungazelelwe, ukumomotheka okumangalisayo kubonakala ebusweni bakho, ngiyaziqhenya, usuvele ubonakala unomqondo omuhle wokuhleka! Kodwa ezikhathini eziningi, awenzi lutho.
/ Ukungabaza
Unezinyanga ezintathu ubudala futhi ungunodoli wamanikiniki, uthambile kakhulu. Awukakwazi ukubamba ikhanda lakho. Lapho ngizama ukuhlala ngesinqe siguqe ngamadolo, isandla sami sisekela isisu sakho, umzimba wakho wonke uwela phansi. Ayikho ithoni. Sengivele ngawukhomba udokotela wezingane obonakala engenandaba. Kubonakala sengathi nginesineke kakhulu. (…) Unezinyanga ezine futhi awuqhubeki ungenzi lutho. Sengiqala ukukhathazeka kakhulu. Ikakhulukazi njengoba ugogo nomkhulu wakho, abangawuvali umlomo ngamazwi abo, besho amazwi angibekela inselele futhi angizwise ubuhlungu: “Mhlawumbe kukhona ukuntuleka kokukhuthazwa, kuzolile kakhulu kuwe” kusikisela umama. “Muhle ngempela, unensa, uthambile, kodwa muhle ngempela” kugcizelela ubaba, emamatheka wonke.
/ Ukuxilongwa"
USamy. Umfana wami. Mncane wami. Akayona ingane efana nezinye, lokho kuyiqiniso. Kutholakale isifo sohlangothi ezinyangeni ezimbalwa nje, isithuthwane, ubuchopho obuvilaphayo, futhi yilokho kuphela esikwaziyo. Kimina, une-autistic. Ngizolandela, njengoba kwenza uFrancis Perrin, ngilandele izinhlelo ezintsha abanye abakwazile ukuzingenisa eFrance, nokubonakala sengathi ziyathuthuka kulaba bantwana. ABA, Fundisa, Pecs, noma yini engasiza uSamy, ngizokwenza.
/ UMarco, umfowabo omkhulu
Wawuneminyaka emithathu efika uSamy empilweni yakho, wawumlindile njenganoma yimuphi ubhuti, unomona, kodwa ofuna ukukholwa lokho atshelwa ngumama wakhe, ubhuti ungumuntu odlala naye esike sixabane naye kodwa namanje umngane impilo yonke. Futhi akukho kulokho okwenzeka.
Ngaphandle kwakho uxabanisa izimo eziningi: “Ungakhathazeki, kujwayelekile, une-autistic, unesifo ekhanda lakhe” ingabe umemezela ngokungagwegwesi kubantu abasibhekile, ungakhululekile, kuyilapho uSamy eshwibeka ngokuthanda ukwazi, ekhipha ukukhala okuncane . Kodwa futhi ungangitshela ngokuhlekisa ngoba unokuningi: “Kungenzekani uma simshiye lapho, mama? .. Ngiyaxolisa!” ”
(…) Leli hlobo iminyaka emibili ka-Samy. UMarco unomdlandla. Sizoba nephathi, huh mama?
– Tshela umama, ngasiphi isikhathi esiba nalo usuku lokuzalwa lukaSamy?
– Tonight at dinner, ngokungangabazeki. Kungani ?
- Ah yingakho ... Kuzomele silinde kuze kube namuhla ebusuku.
– Lindani? Ngiyacela
– Well mvumele ashintshe! myeke abe ngcono! Namhlanje ebusuku njengoba ezoba neminyaka emibili angeke kusaba ingane, uyabona kuzobe sekuyingane, uzohamba emamatheka ngigcine ngidlala ngaye! UMarco ungiphendula ngobumsulwa obuhle kakhulu.
Ngimoyizele ngesisa bese ngiya kuye. Angilokothi ngiphule iphupho lakhe ngokucacile.
/ Ubusuku obunzima
USamy uba nokuquleka okukhulu ebusuku, unodlame kakhulu kuye. Izihlathi zakhe ezinegazi azisenaso isikhathi sokuphola. Futhi angisenawo amandla okulwa naye ubusuku bonke, ukuze angazilimazi. Njengoba ngiwenqaba umbono womuthi owengeziwe, nginquma ukuklama i-camisole. Le nhlanganisela ingenye yemibono engcono kakhulu engake ngaba nayo. Ngesikhathi ngiyifaka okokuqala, lapho izintambo ze-Velcro sezinamathiselwe, ngacabanga ukuthi ngiwaqinise kakhulu… Wayebukeka ekahle, amehlo akhe ezolile, ejabule… Ngezwa imisipha yakhe ngaphansi komzimba wami ikhululeka. Ubusuku obalandelayo babungebuhle neze, kodwa uSamy akazange amemeze kakhulu, futhi akakwazanga ukuzilimaza. Nokho, ubusuku buye baba ngcono kakhulu kithina sobabili. Angibange ngisasukuma njalo ngemva kwamahora amabili ukuze ngimvikele ukuthi angazilimazi ...
/ Ukubukeka kwabanye
Namuhla ekuseni ngihambisa uSamy esikhungweni sokunakekela izingane. Ngenza i-niche yami. Amadoda amabili ayehlezi esitolo angimemeza: “Ake uthi, Mademoiselle!” Ulithole kuphi ibheji lakho elikhubazekile? Eskhwameni sokumangala? Noma kukhona omaziyo osesikhundleni esihle? Yebo kufanele kube njalo, intombazane enhle njengawe! ”
Ingabe kufanele ngibonge ukunconywa noma ukuvukela ukubhuqa kwabo? Ngikhetha ukwethembeka. Ngiyaphenduka futhi, ngenkathi ngivula isicabha sikaSamy, ngibamamatheka kakhulu “Cha Madoda. Ngayithola njengesipho lapho indodana yami izalwa! Uma uthanda ngizokunika. Ekugcineni ngikunika wona. Ngoba kuhambisana. “
/ Umndeni ohlanganisiwe
URichard usezivumelanise ngokuphelele nempilo yami yokuhlanya. Normal, crazy, yena kancane yena. Njengomoya opholile, namahlaya akhe angagwegwesi, i-joie de vivre yakhe, ukukhuluma kwakhe ngokungagwegwesi, kwalezo ngezinye izikhathi ezicasulayo, kodwa ngokuvamile okuhle ukukusho, namandla akhe, wengeza inhlansi yakhe yokuphila kweyethu. Uyafika, apheke, athathe uSamy ezandleni zakhe, futhi ngaphezu kwakho konke, uvumela uMarco ukuba ehlise isisindo agcine ebeke emahlombe akhe. Futhi-ke uRichard unendodakazi, uMarie, elingana neyami enkulu. Izingane ezimbili ngokushesha zayishaya ngendlela emangalisayo. Ithuba langempela. Futhi umama njengoba kungase kube amantombazane amancane, uphuthuma ngokushesha nje lapho uSamy eqhuma, ucela ukusiza ngokudla, ukumenza adlale.
/ Merci Samy !
Kodwa uSamy unezinzuzo. Naye uhlanganyela ekuphileni komkhaya okungavamile esinakho, futhi, ngendlela yakhe, usisindisa ezimweni eziningi. Futhi kulezo zimo, mina noMarco simnika konke ukubonga kwethu. Ngokwesibonelo, ngezinye izikhathi sisebenzisa u-Samy esitolo. Futhi hhayi nje ukugwema umugqa futhi udlule phambi kwawo wonke umuntu (yebo ngiyavuma, ngijabule kakhulu ukukwenza, ngisho nalapho, ngokuyisimangaliso, uSamy ezolile emini, futhi akukho lutho olungathethelela ukuzulazula kwami ikhadi lakhe lokukhubazeka. ukuya ngokushesha ekuphumeni), kwesinye isikhathi ukuze nje uthole injabulo yokubeka umuntu endaweni yakhe. Kunjalo, uSamy wami omncane, ulungele ukusinikeza umoya! Naye, i-glue ayisekho, ukuntuleka kwesikhala ku-metro, noma ngisho nasesigcawini. Ngokumangazayo, lapho nje sifika endaweni ethile, kunesikhala esisizungezile, futhi endaweni yethu!
"Isela lezixubho", ngu-Églantine Éméyé, ed. U-Robert Laffont, eshicilelwe ngo-September 28, 2015. Umsingathi we-"Midi en France", e-France 3, kanye nentatheli "ngokuphela kweviki le-RTL" noBernard Poirette. Uphinde abe ngumsunguli nomongameli wenhlangano ethi “Un pas vers la vie”, eyakhiwe ngo-2008 eyenzelwe izingane ezine-autism.