Amadodakazi kaDistilbène
Agnès
“Ngiyintombazane yase-DES, nodadewethu. Nganginomdlavuza wesikhumba lapho ngineminyaka engu-25, kodwa isixhumanisi ne-DES asibonakali. Ngaphuphunyelwa yizisu izikhathi ezinhlanu ngaphambi kokuba ngiyotholwa. Asizange siye ekupheleni kwalolu hlelo (izinsuku ezingu-15 kusukela kumklomelo) ngoba ngangiphinde ngikhulelwe futhi angikwazanga ukubeka engozini yokuya eShayina esifundeni sami. Zonke izinyathelo zokuphepha zithathwe: ukuphumula kombhede kusukela ekuqaleni kokukhulelwa, okusho ikhefu lokugula. Ngenza usongo lokubeletha ngaphambi kwesikhathi amasonto angu-18 e-amenorrhea futhi ngilaliswa esibhedlela izinyanga ezingu-4 nengxenye (kuhlanganise nezinyanga ezingu-2 200 km ukusuka ekhaya kanye nenyanga eyodwa 100 km).
U-Benoît wazalwa cishe emasontweni angu-37, lapho ngiqala ukuhamba futhi ngikhuphuka izitebhisi futhi. Yayingamasentimitha angu-45 kanye no-2,5 kg (yayingeke isakwazi ukukhula esibelethweni sami esigcwele). U-Benoît unempilo enhle kodwa udinga ukuqapha izinso zakhe kwesokunxele, cishe uzohlinzwa eneminyaka engu-2 ubudala. Ukungajwayelekile kwezinso zakhe kungase kuhlotshaniswe nokwelashwa okwenziwa ngesikhathi sokubeletha okusongelwa ngaphambi kwesikhathi lapho ngehliselwa khona uketshezi lwe-amniotic ukuze ngiphumuze isibeletho. Noma mhlawumbe umphumela we-DES esizukulwaneni sesithathu, asazi…
Ngemva kokuphuphunyelwa yisisu okwesithupha, njengamanje nginamasonto angu-13 ngikhulelwe. Ngiphinde ngiboshwe futhi ngilele embhedeni. Ngifuna ukugwema isibhedlela ukuze nginakekele ubuncane buka-Benoît onezinyanga ezingu-19 ubudala. Sisanda kuthuthela endaweni entsha kulandela ukudluliswa kochwepheshe. Isibhedlela sika-Level 3 siqhele ngamakhilomitha angu-70 kuphela kodwa, ngakolunye uhlangothi, asisenabo umndeni noma abangani abangangisiza ngesikhathi ngisembhedeni. Ukukhulelwa kuthembisa ukuthi kuzoba nzima kakhulu ngokuhleleka…”
Laure
“Ngiyintombazane e-distilbene, kimina okusho ukungalungi kahle, ukukhulelwa kwe-ectopic, ukwelashwa okuhlukahlukene nokuhlukahlukene, inseminations, i-IVF… Nginendodakazi eneminyaka engu-8 nohhafu engaba nayo ngemva kwesihogo sokulwa. Ngiphinde nganquma ukuyiqala le mpi eminyakeni emibili edlule ngethemba lokuthi ngizophinda lesi simangaliso. “
Virginia
“Ngiyindodakazi ye-distilbene, owazalwa ngo-1975, ngakho ekupheleni kwencwadi yami kadokotela kusukela lesi sidakamizwa savalwa ngo-1977. Ngaphuphunyelwa yisisu futhi ngakhulelwa i-ectopic. Ngemva komsebenzi osheshayo wokusiza abantu bathole inzala, njengamanje nginomyeni wami, sisohlelweni lokutholwa.
Ngiyilungu lenhlangano "Les filles DES" futhi kuyiqiniso ukuthi isibalo esikhulu sabesifazane abathintekayo abalandelwa kahle emsebenzini wabo, abakazisani noma kufanele babhekane nokuphika emhlabeni wezokwelapha. “
Valérie
“Ngineminyaka engu-42 ubudala futhi umama wami waphuza i-distilbene ngesikhathi sokukhulelwa kwakhe. Lapho ngineminyaka engu-28, ngesikhathi ngikhulelwe okokuqala, ngathola ukuthi nginomdlavuza womlomo wesibeletho. Ngemuva kwalokho kwadingeka ngihlinzwe i-hysterectomy… ”
U-Anne :
“Kusukela ngisemncane ngiyazi ukuthi ngiyintombazane yakwa-DES ngoba umama wangitshela futhi wanginakekela udokotela wabesifazane eToulouse. Eminyakeni engu-16, i-ultrasound yokuqala yembula isibeletho esimise okwe-T namaqanda ama-micro-polycystic. Kamuva, ngizophinde ngitshelwe nge-adenosis futhi, iminyaka, ngiba nemijikelezo evamile evamile futhi ngokuvamile izikhathi ezibuhlungu kakhulu. “
Martine
“Ngiyintombazane e-distilbene futhi ngakwazi ukuba nezingane ezimbili. Ngalala kusukela enyangeni yesithathu ngikhulelwe ngabeletha nginezinyanga eziyisi-7. Kodwa namuhla nginamadodakazi amabili aneminyaka engu-2 nengu-5 asesimeni esihle. Ngakho-ke kungenzeka ukuba nezingane naphezu kwe-distilbene. “
Amélie
“Ngineminyaka engu-33 ubudala futhi, njengamanye amantombazane amaningi e-DES, nginokuphazamiseka kwezitho zangasese (isibeletho esimise okuka-T, i-ectropion emlonyeni wesibeletho, i-endometriosis, i-dysplastic nama-polycystic ovaries, imijikelezo ye-anovulatory, njll.). Ngamafuphi, yibuphi ubunzima bokuba nomntwana !!! Ngemva kweminyaka eminingana yobunzima, kusukela ekuhlinzweni kuya ekuhlinzeni, kusukela ekwelapheni kuye ekwelapheni, sakwazi ukuba nengane eyisimangaliso, naphezu kokukhulelwa okulele embhedeni, okwesabisa kakhulu, okucindezela kakhulu lapho kubalwa khona nsuku zonke.
Indodana yami yazalwa ngaphambi kwesikhathi inamasonto angu-35 ikhulelwe, isisu sami noma kunjalo sasiyibhaluni langempela elilungele ukuqhuma… Ukuphila ne-DES kuyifilimu yangempela enokusonteka nokushintshashintsha, akalokothi asishiye sodwa! “
pascal
Ngineminyaka engu-36 futhi indodakazi yami izoba neminyaka engu-13 ubudala. Uhambo lwami lwaluyingozi njengamantombazane amaningi e-distilbene: ukuphuphunyelwa yizisu okubili, esokuqala sinezinyanga ezi-5 nengxenye sikhulelwe, intombazanyana eyazalwa iphila kodwa eyasinda. Unyaka owodwa ngemva kokuphuphunyelwa kwesisu kwesibili ezinyangeni ezi-4 nengxenye zokukhulelwa, udokotela wezifo zabesifazane wayefuna ukwazi ukuthi kungavelaphi futhi ngemva kwe-hysterography, i-venography ... isinqumo safinyelelwa: i-distilbene!
Endodakazini yami, kwadingeka ngiboshwe ibhande elakhishwa ngenxa yokufinyela okuningi, futhi yazalwa ngaphambi kwamasonto amahlanu. Ukukhulelwa kwami kwakunzima kakhulu: ukopha, ukufinyela, ukulala embhedeni kusukela ekuqaleni kuze kube sekugcineni, ingasaphathwa eyokuhlala njalo emtholampilo. Futhi lapho, ngisanda kufunda ukuthi ngine-dysplasia yomlomo wesibeletho futhi kufanele ngihlinzwe. Labo abathintekayo kumele bakhokhe ngomonakalo abawenza eminyakeni engu-30 edlule nomonakalo abasawenza. “