Okuqukethwe
Iphupho labazali ngengane ephelele ngezinye izikhathi liyashabalala lapho bezwa ngokukhubazeka kwabo. Kodwa namuhla, nokho, akukho lutho olungenakunqotshwa. Futhi-ke, phambi kothando lwengane, noma yini engenzeka!
Ukuhlala nengane ehlukile
Kungakhathaliseki ukuthi yini isidalwa esincane esisanda kuzalwa, nanoma yikuphi ukukhubazeka okungenzeka unakho, yinhliziyo ekhuluma ngaphezu kwakho konke. Ngoba, naphezu kwabo bonke ubunzima, akumelwe sikhohlwe okubalulekile: ingane ekhubazekile idinga ngaphezu kwakho konke, ukuze ikhule ngaphansi kwezimo ezingcono kakhulu, uthando lwabazali bayo.
Kubonakala noma kungabonakali lapho izalwa, imnene noma inzima, ukukhubazeka kwengane kuwuvivinyo olubuhlungu emkhayeni, futhi lokhu kuyiqiniso nakakhulu uma ukumenyezelwa kwesifo kwenziwa ngokuzumayo.
Ingane ekhubazekile, umuzwa omubi wokungabi nabulungisa
Kuzo zonke izimo, ifayela le- abazali babe sebenqotshwa umuzwa wokungabi nabulungisa nokungaqondi. Bazizwa benecala ngokukhubazeka kwengane yabo futhi bakuthola kunzima ukukwamukela. Ukushaqeka. Abanye bazama ukunqoba lesi sifo ngokuthola ikhambi lokunqoba ubuhlungu, abanye bayasifihla amasonto noma… isikhathi eside.
UDkt Catherine Weil-Olivier, iNhloko yoMnyango Wezempilo Yezingane e-Louis Mourier Hospital (Colombes), ufakaza ubunzima ekumemezeleni ngokukhubazeka nokukwamukela ngabazali:
Umama usithululela isifuba kanje:
Ukunqamula ukuzihlukanisa nobuhlungu kungenzeka sibonga izinhlangano eziningi ezisekela abazali futhi zilwela ukuzenza baziwe futhi babonakale. Ngenxa yabo, imikhaya ephila ukuphila okufanayo kwansuku zonke ingahlanganyela izinkathazo zayo futhi isizane. Ungangabazi ukuxhumana nabo! Ukuxhumana neminye imindeni ebhekene nezinkinga ezifanayo kukuvumela ukuba uphule lo muzwa wokuvalelwa ngaphandle, ungabe usazizwa ungenakuzisiza, uqhathanise isimo sakho namacala abucayi ngezinye izikhathi futhi ubeke izinto ngendlela efanele. Kunoma yikuphi, ukukhuluma.
Okungukuthi
"Ukubonisana okukhethekile"
Abazali abakhathazekile ngokuba ngabathwali “bofuzo olubi” bangaya kobonana nofuzo lwezokwelapha. Bangaphinde badluliselwe, uma kwenzeka umlando womndeni, ngudokotela ojwayelekile noma udokotela wokubelethisa.
Ukubonisana ngofuzo lwezokwelapha isiza izithandani:
- hlola ubungozi babo bokuba nengane ekhubazekile;
- ukwenza isinqumo uma kunengozi efakazelwe;
- ukuze bondle ingane yabo ekhubazekile nsuku zonke.
Ukukhubazeka kwansuku zonke kwengane
Ukuphila kwansuku zonke ngezinye izikhathi kuphenduka umshikashika wangempela kubazali, abasahlale bengabodwa.
Nokho, kukhona abazali okuthi lapho beshayela umfanyana wabo esikoleni, bahlale bemamatheka. Lokhu kunjalo kubazali baka-Arthur, i-Down's Syndrome encane. Umama womunye umngane wakhe omncane uyamangala:
Kungenxa yokuthi abazali baka-Arthur bayaziqhenya ngokukwazi ukuyisa ingane esikoleni njengazo zonke ezinye izingane, futhi bamukele ukukhubazeka komtwana wabo.
Inkosikazi ka-Arthur esencane iyachaza:
Ngakho, njengaye, ingane yakho ingase ikwazi ukuya esikoleni, uma ukukhubazeka kwayo ikuvumela, futhi ilandele imfundo evamile, uma kudingekile, amalungiselelo avumelana nokusungulwa. Isikole nakho kungaba ingxenye. Lokhu kuvumeleke kwengane encane ene-Down's syndrome, njengoba sisanda kubona noma enganeni enenkinga yokubona noma yokuzwa.
Ingane ekhubazekile: iyiphi indima yabafowethu nodadewethu?
Umama ka-Margot, u-Anne Weisse ukhuluma ngendodakazi yakhe enhle encane, eyazalwa ine-cerebral hematoma futhi okungenzeka ukuthi ingahambi ngaphandle komshini:
Uma lesi sibonelo siyakha, akuvamile ukuthi izingane zakubo zivikele ingane yazo ekhubazekile, noma uyivikele ngokweqile. Futhi yini engaba evamile? Kodwa qaphela, lokhu akusho ukuthi abafowethu abancane noma odade abakhulu bazizwa benganakiwe. Uma i-Pitchoun ijwayele ukuhoxisa ukunakwa nesikhathi sikaMama noma sikaBaba, kuyadingeka futhi nikela izikhathi ezikhethekile kwezinye izingane zomndeni. Futhi asikho isidingo sokubafihlela iqiniso. Kungcono futhi ukuthi basiqonde isimo ngokushesha ngangokunokwenzeka. Enye indlela yokubenza bamukele kalula ukukhubazeka komfowabo noma udadewabo omncane futhi bangabi namahloni ngakho.
Banike amandla futhi ngokubakhombisa indima yokuzivikela abangayidlala, kodwa ezingeni labo, ukuze kungabi umthwalo osindayo kubo. Nakhu okwenziwa nguNadine Derudder:“Sinqume, mina nomyeni wami, ukuthi sichaze yonke into ku-Axelle, usisi omkhulu, ngoba kwakubalulekile ekulinganiseni kwakhe. Uyintombazane encane ethandekayo eqonda yonke into futhi evame ukunginikeza izifundo! Uyamthanda udadewabo, udlala naye, kodwa ubonakala ekhungathekile ukungamboni ehamba. Okwamanje konke kuhamba kahle, bayahambisana futhi bayahleka ndawonye. Umehluko uyacebisa, ngisho noma kunzima kakhulu ukuvuma ngezinye izikhathi.
Cabanga unakekelwe!
Awuwedwa. Eziningana izinhlangano ezikhethekile ingakwazi ukuhlalisa ingane yakho encane futhi ikusize. Cabanga ngokwesibonelo:
- of I-CAMPS (Isikhungo sangaphambi kwesikhathi se-medico-social action) enikeza ukunakekelwa kwamahhala kwemikhakha eminingi ku-physiotherapy, amakhono e-psychomotor, ukwelapha ngenkulumo, njll., kubekelwe izingane ezineminyaka engu-0 kuya kweyisi-6 ubudala.
Ulwazi ku-01 43 42 09 10;
- of I-SESSAD (Inkonzo Yezemfundo Ekhethekile Nokunakekelwa Kwasekhaya), ezinikeza ukusekela emindenini kanye nosizo ngokuhlanganiswa kwesikole kwezingane ezisuka ku-0 kuya ku-12-15 ubudala. Ngohlu lwama-SESSAD: www.sante.gouv.fr
Ingane ekhubazekile: ukulondoloza ukubumbana komndeni
UDkt Aimé Ravel, udokotela wezingane e-Jérôme Lejeune Institute (Paris), ugcizelela ukuthi kufanele kuthathwe indlela egunyazwe ngazwi linye: “Indlela yokwenza iyahlukahluka kuye enganeni ngoba wonke umuntu ushintshashintsha, kodwa wonke umuntu uyavumelana ngephuzu elilodwa: Ukwesekwa komndeni kufanele kusheshe, kusukela ekuzalweni. "
Kamuva, lapho sebekhulile, izingane ezikhubazekile ngokuvamile ziyawazi umehluko wazo kusenesikhathi ngoba ngokwemvelo baqhathanisa nabanye. Ngokwesibonelo, izingane ezine-Down's syndrome ziyakwazi ukubona kusukela zineminyaka emibili ukuthi azikwazi ukwenza izinto ezifanayo nabadlala nazo. Futhi abaningi bayahlushwa. Kodwa lokhu akusona isizathu sokunqamula ingane ezweni langaphandle, ngokuphambene nalokho. Ukuxhumana nezinye izingane kuyomvumela ukuba angazizwa ekhishwa inyumbazane noma ehlukanisiwe, futhi isikole, njengoba sesibonile, sizuzisa kakhulu.
UProf. Alain Verloes, isazi sofuzo esibhedlela i-Robert Debré (Paris), ukufingqa kahle futhi uveza le ngane esikhathini esizayo: “Naphezu komehluko nokuhlupheka kwale ngane, ingaphinde ijabule izwa uthando lwabazali bayo futhi ibone ngokuhamba kwesikhathi ukuthi inendawo yayo emphakathini. Kufanele usize ingane yakho ukuba izamukele futhi izizwe yamukelekile futhi ithandwa ”.
Ungabuzi kakhulu kuBaby
Kuzo zonke izimo, akukuhle ukufuna ukumkhuthaza kakhulu uMntwana ngazo zonke izindlela noma umbuze izinto angakwazi ukuzenza. ungakukhohlwa lokho yonke ingane, ngisho “evamile”, inemingcele yayo.
U-Nadine ukuchaza kangcono kunanoma ubani ngokukhuluma ngoClara wakhe omncane, ophethwe yi-cerebral palsy, ompilo yakhe yayigxiliswe izikhathi ze-physiotherapy, i-orthoptics ...: “Ngangimthanda, kodwa ngabona kuye ukukhubazeka kuphela, kunamandla kunami. Ngakho, kancane kancane, umyeni wami washabalala futhi wangishiya ngisangene. Kodwa ngolunye usuku, ngenkathi sihamba ngezinyawo, wabamba isandla sikaClara wasixhawula kancane ukuze adlale. Futhi lapho, waqala ukuhleka kakhulu !!! Kwakufana nokushayiswa kukagesi! Ngangiqala ngqa ukubona ingane yami, intombazanyana yami ihleka futhi angibange ngisayibona ikhubazekile yayo. Ngazitshela: “Uyahleka, uyingane yami, ufana nodadewenu, umuhle kakhulu…” Ngabe sengiyeka ukumhlukumeza ukuze athuthuke futhi ngazinika isikhathi sokudlala naye. , ukumbamba ... "
Funda ifayela elikumathoyizi ezingane ezikhubazekile
Uyafuna ukukhuluma ngakho phakathi kwabazali? Ukunikeza umbono wakho, ukuletha ubufakazi bakho? Sihlangana ku-https://forum.parents.fr.