U-Luca waphathwa isifo esingavamile kakhulu: I-ROHHAD syndrome yatholakala kubantu abangu-75 kuphela emhlabeni jikelele.
Abazali babazi ukuthi indodana yabo yayizoshona kusukela ngosuku lo mfana eneminyaka emibili ubudala. Ngokungazelelwe uLuka waqala ukukhuluphala ngokushesha. Kwakungekho zizathu zalokhu: akukho zinguquko ekudleni, akukho ukuphazamiseka kwe-hormonal. Ukuxilongwa kwakubi kakhulu - i-ROHHAD syndrome. Kuwukukhuluphala okungazelelwe okubangelwa ukungasebenzi kahle kwe-hypothalamus, umoya oshisayo wamaphaphu, kanye nokungasebenzi kahle kwesimiso sezinzwa ezizimele. Lesi sifo aselapheki futhi sigcina ngokufa ngamaphesenti ayikhulu ezimweni. Asikho nesisodwa isiguli esinophawu lwe-ROHHAD osekwazile ukuphila kuze kube yiminyaka engu-20 ubudala.
Abazali bomfana bavele bavume ukuthi indodana yabo izofa. Nini - akekho owaziyo. Kodwa kuyaziwa ngokuqinisekile ukuthi uLuka ngeke aphile aze abe mdala. Ukuhlaselwa yinhliziyo enganeni sekuyinto evamile ekuphileni kwayo, futhi ukwesaba sekuphenduke umngane waphakade wabazali bayo. Kodwa bazama ukwenza umfana aphile impilo evamile, efana nontanga yakhe. ULuka waya esikoleni (wayethanda kakhulu izibalo), wangena ezemidlalo, waya eklabhu yaseshashalazini futhi wakhuleka inja yakhe. Wonke umuntu wayemthanda - kokubili othisha nabafundi afunda nabo. Futhi umfana wayekuthanda ukuphila.
“ULuka ungugwaja wethu onelanga. Unamandla amakhulu okuzimisela kanye nomuzwa omangalisayo wokuhlekisa. Ungumuntu ononya, "- ngale ndlela umpristi wesonto, lapho uLuka nomndeni wakhe baya khona, bakhuluma ngaye.
Umfana wayazi ukuthi uzofa. Kodwa akusona isizathu esenza ukuba akhathazeke. ULuka wayazi ukuthi abazali bakhe babezodabuka kanjani. Nengane egulela ukufa, eyayizizwa isekhaya esikhungweni sabagula kakhulu, yazama ukududuza abazali bayo.
“Sengikulungele ukuya ezulwini,” kusho uLuca etshela ubaba. Uyise wengane wawasho la mazwi emngcwabeni womfana. ULuka washona ngemva kwenyanga eneminyaka engu-11 ubudala. Ingane ayikwazanga ukubekezelela esinye isifo senhliziyo.
“ULuka manje usekhululekile ebuhlungwini, akanakho ukuhlupheka. Waya ezweni elingcono, – kusho u-Angelo, uyise wengane, emi phezu kwebhokisi, epende ngayo yonke imibala yothingo. U-Luka wayefuna ukuvalelisa kuye kungabi muncu - wayethanda lapho injabulo ibusa eduze kwakhe. – Ukuphila kuyisipho esibalulekile. Jabulela yonke iminithi njengoba kwenza uLuka. “
- Ukuthatha isithombe:
- facebook.com/angelo.pucella.9
Phakathi nokuphila kwakhe, uLuka wayezama ukusiza abantu. Wenza umsebenzi wokusiza abantu abadala ngokuphelele: wasiza ukuhlela izinhlanga ukuze asize abantu abagula kakhulu, wavula isitolo ngokwakhe, imali ephuma kuyo ukuze asindise izimpilo zabanye abantu. Ngisho nangemva kokufa kwakhe, umfana wanikeza abanye abantu ithemba. Waba ngumnikeli ngemva kokufa futhi ngaleyo ndlela wasindisa izimpilo ezintathu, kuhlanganise nengane eyodwa.
“Phakathi nokuphila kwakhe okufushane, uLuka uye wathinta izimpilo eziningi, wabangela ukumamatheka nokuhleka okuningi. Uyophila phakade ezinhliziyweni nasezingqondweni. Ngifuna izwe lonke lazi ukuthi siziqhenya kangakanani ngokuba abazali bakaLuke. Simthanda ngaphezu kokuphila. Umfana wami othandekayo, omangalisayo, ngiyakuthanda,” kubhala umama kaLuka ngosuku lomngcwabo wendodana yakhe ayithandayo.