Lapho ukukhubazeka kucasula izingane zakini
Ukuzalwa kwengane ekhubazekile, ngokwengqondo noma ngokomzimba, kunethonya ngempela emndenini wansuku zonke. Imikhuba isishintshile, isimo sezulu siyaphithizela ... Imvamisa ngenxa yomfowabo noma udadewabo womuntu ogulayo, osuke ekhohlwa.
“Ukuzalwa kwengane ekhubazekile akuwona umsebenzi wabazali kuphela. Kuphinde kuthinte abafowethu nodadewethu, abanomthelela ekwakhiweni kwabo ngokwengqondo, indlela yabo yokuphila, ubunikazi babo emphakathini kanye nekusasa labo ” kuchaza uCharles Gardou *, umqondisi womnyango wesayensi yezemfundo e-University of Lyon III.
Kunzima ukubona ukungakhululeki okungenzeka kwengane yakho. Ukuze avikele umkhaya wakhe, uququda athule. “Ngilinda ngize ngilale embhedeni wami. Angifuni ukwenza abazali bami badabuke kakhulu ”, kusho uThéo (oneminyaka engu-6 ubudala), umfowabo kaLouise, ophethwe yi-Duchenne muscular dystrophy (iminyaka engu-10 ubudala).
Isiphithiphithi sokuqala akusona ukukhubazeka, kodwa ukuhlupheka kwabazali, okubhekwa njengokushaqeka kwengane.
Ngaphezu kokwesaba ukugcwalisa isimo sezulu somndeni, ingane ibheka isigwebo sayo njengesesibili. “Angikhulumi ngezinkinga zami esikoleni, ngoba abazali bami basuke bedabukile nodadewethu. Noma kunjalo, izinkinga zami, azibalulekile kangako ”, kusho uThéo.
Ngaphandle kwendlu, ukuhlupheka kuhlala kungakhulunywa. Umuzwa wokuhluka, ukwesaba ukuheha isihawu kanye nesifiso sokukhohlwa okwenzeka ekhaya, cindezela ingane ukuba ingathululi isifuba kubangane bayo abancane.
Ukwesaba ukulahlwa
Phakathi kokubonisana nodokotela, ukuwashwa nokudla, ukunakwa kwesiguli esincane ngezinye izikhathi kuphindwe kathathu uma kuqhathaniswa nesikhathi esichithwa nezinye izingane zakubo. Omdala uzozizwa lokhu "kulahlwa" kakhulu kusukela ngaphambi kokuzalwa, uyena yedwa owabamba ukunaka kwabazali bakhe. Ukuqhekeka kunesihluku njengoba kusanda kuqala. Kangangoba uzocabanga ukuthi akaseyena umgomo wabo wokuthandwa ... Buza indima yakho yobuzali: kufanele wazi ukuthi uzibeka kanjani esimweni lapho ubhekene nokukhubazeka, futhi njengabazali abatholakala kwezinye izingane ...
* Abazalwane nodade babantu abakhubazekile, u-Ed. Eres