Angizange ngibe uhlobo lokuba nengane. Ngangingowohlobo lwabahambi.Ngimagange okuhlangenwe nakho nokuhlangana nobuhlakani, ngabhala izihloko nezincwadi, ngathandana njalo, futhi ukugaya ukudla komntwana kwakungeyona ingxenye yemvelo yami esemkhathizwe. Cha ekuhlukaniseni, cha ku-loping "areuh" kanye nezindawo zokuphuma ezinecala. Cha ngane, ngicela! Ngephutha ngakhulelwa umGreki engangimthanda ngempela kodwa owabuyela ezweni lakubo ngemva nje kokuzalwa kuka-Eurydice, wasishiya singenalutho ngaphandle kwephunga likagwayi obandayo. Akazange ayibone indodakazi yakhe. UVasilis, lona osemusha osemusha, ngokungangabazeki wayengafuni ukuhamba nami endleleni yeqiniso. Ngoba u-Eurydice, lapho ezalwa, wayengenawo amapheya angama-23 ama-chromosome njengathi, kodwa angamapheya angama-23 nengxenye. Eqinisweni, abantu abane-Down's syndrome banama-chromosome esigamu esengeziwe. Yile ngxenye encane eyengeziwe engifuna ukukhuluma ngayo, ngoba kimina ingxenye engcono, nakakhulu, nakakhulu.
Indodakazi yami yaqale yadlulisela amandla ayo kimi, lawo ayenza yamemeza ezinyangeni ezimbalwa zokuphila, ebiza ukugibela kwezinqola ezingapheli nokuphuma edolobheni. Ngoba ukulala, bengishayela. Ngisashayela ngabhala ekhanda lami. Mina ngesaba ukuthi iDayisi lami, - noBuddha ngesikhathi sokuzalwa, ngendlela eqoqiwe, ekhuluphele kakhulu ngezingubo zentombazanyana engangiyihlelele -, izongithatha ugqozi lwami, ngathola ukuthi ngokuphambene nayo, ingqondo yayigijima. Ngangesaba ikusasa, kuyiqiniso, nosuku lapho izingxoxo zethu zizophela khona. Kodwa ngokushesha okukhulu, kwadingeka ngivume ukuthi kunoma yikuphi, akuzange kuvimbele eyami ukusebenza. Kwaze kwamvumela ukuthi asebenze kangcono. Ngokunembayo, ngobuqotho. Bengifuna ukukhombisa indodakazi yami izinto eziningi futhi ngihambe nayo ohambweni. Naphezu kwezimali zami ezazingekho esimweni esihle, ngaba nomuzwa wokuthi umfutho ofanayo wawudingeka kithi. Phakathi nalesi sikhathi, asizange siyeke ukwazana, ngisho nakuba ngezinye izikhathi sibhekana nezingozi eziyingozi. Ngangintula imali, ukulondeka, ngezinye izikhathi sasihlangana nabantu abangabazi, futhi ngemva kokubaleka okumbalwa, nganquma ukubuyela eCrete. Kude nami umqondo wokuvuselela ilangabi noVasilis engangivele ngimazi ukuthi waphinde wahlukana nomunye, kodwa ngangifuna ukubona ukuthi ukusekelwa okuthile okungokwenyama kungavela yini emndenini wakhe. Maye, udadewabo nomama wakhe nabo bethuswa nguye basigwema ngangokunokwenzeka. Kepha yena, wenqaba noma yikuphi ukubuyisana nomncane, echitha isikhathi engangimnike sona ogwini ukuze akhethe, wavuma kimina, ukuhamba nenja yakhe ... nokho ngavuma kulokho 'angibuza kona: i-DNA. test. Ngempela, kuye kwabonakala kungenakwenzeka ngempela ukuba ubaba wengane ene-Down's syndrome. Isinqumo siphakathi. UVasilis wayenguyise ka-Eurydice ngempela, kodwa lokho akuzange kusishintshe isimo sakhe sengqondo. Kungakhathaliseki ukuthi, ngajabula ukufika lapha, eChania, eCrete. Lapho okhokho bakaDice bazalelwa khona, lapho ababehlala khona, kulawo matshe asendulo nakulowo moya. Amasonto amabili okuhlala kwakhe akazange amnike ubaba, kodwa aqhubeka aqinisa ubuhlobo bethu. Kusihlwa, ethafeni lethu, sasithanda ukusho ukuthi lala enyangeni kuyilapho sihogela iphunga lesage ne-thyme.
Lezi phunga ezifudumele, ngakhohlwa ngokushesha lapho ngingena enkulisa, u-Eurydice waba ne-leukemia. Lapho ukwelapha okwethusayo kufanele kuqale, ubaba wahlela ukusifaka esibhedlela eLos Angeles futhi abhalise omncane kumshwalense wakhe wezempilo. Indodakazi yami egqoke imibala ecwazimulayo yayimbozwe nge-catheter namashubhu. Ngedwa nami (uyise engangimbuze ukuthi angaba yini umnikezeli womnkantsha ohambisanayo wasikisela ukuthi ngiyeke futhi ngingenzi lutho ukumsindisa), uDayisi wabekezelela zonke izinhlobo zokwelashwa ezimbi, ngesibindi. . Njengoba ngangifisa ukulahlekelwa nguye, ngasebenzisa zonke izinsuku zekhefu ukuze ngiphuthume ngaphandle ngimnike noma yini engangingase imjabulise. Ngokushesha ngabuyela emzimbeni wakhe omncane obuhlungu, futhi ngalalela abahlengikazi bethi u-Eurydice "wayeyisithombe sabo senjabulo".Mhlawumbe indlela yakhe yokuphila esikhathini samanje ethinta kakhulu abantu abajwayele ukulangazelela isikhathi esidlule noma izithembiso zekusasa. U-Eurydice, ngakolunye uhlangothi, wasibona leso sikhathi, wajabula. Intando enhle, ukufaneleka kwenjabulo nozwela, yilokhu indodakazi yami ephiwe ngakho. Futhi asikho isazi sefilosofi, ngisho naphakathi kwalabo ebengihlale ngibathanda, esingaqhudelana naye kule ndawo. Sobabili sawuyeka umsebenzi wokuvalelwa izinyanga eziyisikhombisa kuleli gumbi lasesibhedlela nokubekezelela umsindo wemishini. Ngabona indlela yokujabulisa indodakazi yami, idlala umacashelana ngamagciwane okufanele iqhelelane nawo. Sihlezi eduze kwefasitela, sasikhuluma nesibhakabhaka, nezihlahla, nezimoto, nodaka. Saphunyuka kulelo gumbi lika-lino elimhlophe ngemicabango. Kwakuwubufakazi bokuthi ukucabanga ndawonye kwakungeyona into engenakwenzeka… Kwaze kwafika usuku lapho sakwazi ukuphuma, siphuthuma endaweni engenamuntu engumakhelwane futhi sinambithe umhlaba ngeminwe yethu. Umdlavuza wawungasekho nakuba wawusazobhekwa.
Sabuyela eParis. Ukuhlalisa kwakungelula. Lapho sifika, umnakekeli wesakhiwo wangiwisa. Ephawula ukuthi lapho eneminyaka engu-2 nengxenye, u-Eurydice wayengakasebenzi, wangeluleka ukuba ngimfake esikhungweni esikhethekile. Ngokushesha ngemva kwalokho, ngenkathi ngihlanganisa ifayela ngihlose ukuba kubonakale ukukhubazeka kwakhe, ngebiwa isikhwama sami. Ngangiphelelwe ithemba kodwa ngemva kwamasonto ambalwa, lapho ngingakwazanga ukuthumela leli fayela njengoba lalintshontshiwe kimi, ngathola ukwamukelwa. Ngakho-ke isela lalingithumelele ifayela. Lolu phawu lwesiphetho ngaluthatha njengesipho. U-Eurydice wami omncane walinda kwaze kwaba neminyaka engu-3 ukuhamba, futhi lokho kwe-6 ukungitshela ukuthi ngiyakuthanda. Lapho esanda kulimala isandla sakhe futhi ngiphuthuma ukusibhandisha, wadedela: ngiyakuthanda. Ukunambitheka kwakhe kokuhamba kanye nokunyakaza kwakhe ngezinye izikhathi kuholela ekugibeni okuthusayo noma ekubalekeni, kodwa ngihlala ngimthola ekugcineni kwala mafugue ajabulisayo. Ingabe yilokhu akufunayo, ekujuleni kwenhliziyo, ukuhlangana kwethu kabusha?
Isikole kwakungelinye iketela lezinhlanzi, njengoba ukuthola isakhiwo “esanele” kwakuyinselele.Ingane yami ekhubazekile yayingenayo indawo kwaze kwaba yilapho, ngenhlanhla, ngathola isikole esamukela kanye nestudiyo esincane esingekude nalapho sasikwazi ukuhlalisa khona izitabane zethu ezimbili. Khona-ke kwakudingeka ukubhekana nokufa kukababa futhi lapho futhi, u-Eurydice wangibonisa indlela, elalela ukufundwa engangikwenza kuye "Pinocchio" incwadi ubaba ayengathanda ukuba nayo isikhathi sokumfundela. U-Pinocchio wayefuna ukuba ngumfana omncane njengabanye futhi waba njalo ekupheleni kwempilo yakhe, kodwa impilo yakhe etshelwayo ukuthi umehluko wakhe. Indodakazi yami nayo inendaba okumele iyixoxe. Ikhromozomu yakhe eyengeziwe ayikasiphuci lutho. Kwangivumela ukuba ngicabange kangcono, ngithande kangcono, ngihambe ngokushesha. Ngibonga yena, ngiyaqiniseka ngalokhu: “Inhlanhla iyilokho esikudalayo lapho siyeka ukulinda ukuthi ekugcineni imamatheke, lapho siyishiya le nkolelo, siqinisekisa kuze kube sekupheleni. i-anesthesia, ngokusho ukuthi okungcono kakhulu okuseza ”. “
Thola ubufakazi bukaCristina encwadini yakhe:
“23 and a half”, nguCristina Nehring, ehunyushwe esuka esiNgisini ngu-Elisa Wenge (Premier Parallèle ed.), € 16.