Walala ngaphansi komshini wokuphefumula izinyanga eziyisithupha, elindele ukufa kwakhe. Kwenzeka ngenye indlela. Namuhla, usiza abanye abaphethwe isifo esiyivelakancane uphawu lwaso kuwumihuzuko. - Ukuqwashisa inkinga yethu, emcimbini woSuku Lwezifo Ezingavamile emigwaqweni yasemadolobheni asePoland, sizobe sinikeza abantu abadlulayo ama-lollipops aluhlaza okwesibhakabhaka - kusho uPiotr Manikowski, uMongameli wePolish Association of People with Pulmonary. I-Hypertension nabangane Babo.
Kuthathe isikhathi esingakanani odokotela ukuxilonga isimo sakho?
- Lokho kwenzeka eminyakeni eyi-10 edlule. Ngangineminyaka engu-28 ubudala futhi ngangingakwazi ukugibela izitebhisi ukuya esitezi sokuqala. Ngisho nokugqoka noma ukuwasha kwenza umzamo omkhulu kimi. Ngaklinywa, ngaphelelwa umoya, ngezwa ngibhajwa esifubeni. Odokotela basola i-anemia, isifuba somoya, i-pulmonary embolism kanye ne-neurosis. Ngaze ngawathatha amaphilisi okwehlisa umoya. Yebo, akuzange kusize, ngoba ukuxilongwa kwakungalungile. Kwathi ngemva kwezinyanga eziyisi-6 ngafika eWarsaw ukuzobona uProf. U-Adam Torbicki okusolakala ukuthi i-pulmonary embolism, ekugcineni wathola ukuthi i-idiopathic pulmonary hypertension.
Ubuwazi ukuthi kusho ukuthini lokhu kuxilongwa?
- Hhayi ekuqaleni. Ngacabanga – ngizophuza amaphilisi omfutho wegazi ophezulu futhi ngizolulama. Kwakuku-inthanethi kuphela lapho ngafunda khona ukuthi kuyisifo esingajwayelekile, esithinta abantu abangama-400 kuphela ePoland, nokuthi ngaphandle kokwelashwa, ingxenye yabo iyafa phakathi neminyaka emibili yokuxilongwa. Ngasebenza njengochwepheshe be-IT. Ukuxilongwa kwakuhlobene nokushintshela empeshenini yokukhubazeka. Umkami wayesenezinyanga ezintathu ekhulelwe. Ngangazi ukuthi isimo sami sasiwumthwalo kuye. Ngeshwa, ngazizwa ngibi kakhulu futhi kwavela ukuthi ukuphela kwensindiso yami kwakuwukufakelwa kwamaphaphu. UMnyango Wezempilo wangikhokhela ngemali yokungihlinza eVienna.
Ishintshe kanjani impilo yakho?
– Ngazizwa njengenja on a leash. Ngangingenza konke okwakungenakwenzeka ngaphambi kokufakelwa, ngoba umzamo wawungasenzima kimi. Ngeshwa, ngemva kweminyaka emithathu, i-malaise yabuya. Ukufakelwa kwenqatshiwe.
Ingabe usulahlekelwe yithemba?
– Ngokuphelele. Ngangisesibhedlela ngomshini wokuphefumula izinyanga eziyisithupha futhi ngilindele ukufa kwami. Ngangiqulekile isikhathi esiningi, nakuba ngangiba nokuqwashisa. Ngikhumbula ukuwasha ekuseni, ukudla kanye nemithi - imisebenzi enjalo yansuku zonke yemishini.
Kungani walahlekelwa ukholo lokuthi lesi sifo singanqotshwa?
- Ngaphambi kokufakelwa, ngatshelwa ukuthi lokhu kuyindlela yokugcina nokuthi uma ngihluleka, alukho uhlelo "B". Ngakho lapho odokotela be-physiotherapist befika futhi bezama ukunyakazisa umzimba wami, ngoba ngase ngilele lapho izinyanga ezimbalwa, kwabonakala kungenangqondo kimi, ngoba angibange ngisalinda lutho. Ngaphandle kwalokho, umuzwa wokuphelelwa umoya wawunzima njengokungathi kufanele ubeke isikhwama sepulasitiki phezu kwekhanda lakho futhi usiqinise entanyeni yakho. Bengifuna kuphele.
Bese kuba nethuba elisha lokwelashwa ...
– Ngakufanelekela ukufakelwa okwesibili, nakho okwenzeka eVienna. Ngemva kwenyanga, ngabuyela ePoland ngigcwele amandla.
Lokhu kukuguqule kanjani?
– Sekuphele iminyaka emine ukufakelwa kabusha. Kodwa ngeke wazi ukuthi kuzokwenzekani noma kunjalo. Yingakho ngiphila isikhathi esifushane. Angenzi izinhlelo ezikude, angijahi imali, kodwa ngijabulela ukuphila, njalo umzuzu. Umndeni wami, umkami namadodana ayinjabulo enkulu kimi. Ngahileleka emisebenzini yePolish Association of People with Pulmonary Hypertension and Their Friends, engingumongameli wayo.
Iziguli ezine-hypertension yamaphaphu zidinga ukwesekwa - ini?
– Ulwazi ngalesi sifo emphakathini, njengakwezinye izifo ezingavamile, alukho. Umuntu ophile kahle akakwazi ngisho nokucabanga ukuthi osemusha ongakwazi ukubamba umoya wakhe ngokuvamile uyama futhi enze sengathi ubhala umyalezo ukuze angavusi umuzwa. Nabagulayo abasebenzisa izihlalo ezinamasondo uma besukuma beyogibela emotweni noma ekamelweni nabo bavusa umunyu, ngoba kuvela ukuthi abakhubazekile. Yingakho iNhlangano ikhuthaza ulwazi ngalesi sifo yonke indawo.
Lolu lwazi lubuye ludingeke ngodokotela…
- Yebo, ngoba isifo sitholakala sekwephuzile. Futhi ngenxa yokuthi imithi etholakalayo namuhla ivimbela ukuqhubeka kwesifo, kubalulekile ukuqala ukwelashwa ngaphambi kokuba umfutho wegazi ophakeme udale umonakalo emzimbeni.
Yiziphi izinkinga inhlangano ebhekene nazo?
- E-Poland, iziguli zikwazi ukuthola izidakamizwa ze-hypertension yamaphaphu ngaphansi kwezinhlelo zokwelapha, kodwa zifanelekile kuphela lapho lesi sifo sifinyelela esigabeni esibalulekile sokuthuthuka. Odokotela bakholelwa ukuthi ukwelashwa kufanele kuqalwe ngokushesha ngangokunokwenzeka, ngoba ukuvimbela ukuthuthukiswa kwezifo kuzoqala ekuqaleni. Ngakho sizama ukukholisa ungqongqoshe wezempilo ukuthi aguqule indlela yokufaneleka yalolu hlelo. Ukwamukelwa kwezidakamizwa nakho kuyinkinga. Ngaphambili, isibhedlela besikwazi ukumthumela nge-courier. Namuhla, iziguli kufanele zikwenzele mathupha. Uhambo olubi kakhulu kulabo abasesimweni esibucayi. Ngazi owesifazane ogulayo osuka e-Tri-City eya e-Otwock.
Singathanda futhi ukuthi kube nezikhungo eziningana ezikhethekile ze-hypertension yamaphaphu ePoland, lapho odokotela, bexhumana neziguli eziningi, bangenza ucwaningo futhi bathuthukise izindlela zokwelapha. Njengoba lesi sifo singavamile, kunzima ngodokotela ukuba athole ulwazi lwezempilo lapho enakekela isiguli esisodwa noma ezimbalwa.
Yini oyilungiselele ngoSuku Lwezifo Ezingavamile?
-28 February kulo nyaka eWarsaw nangoFebhuwari 29 kulo nyaka. E-Krakow, e-Bydgoszcz nase-Tri-City, kuzovela "i-blue brigade" ekhethekile yeNhlangano yethu emigwaqweni nasezikhungweni zezitolo ezikhethiwe, ngaphansi kwesiqubulo esithi "Lapho uphelelwa umoya ..." izoqhuba umkhankaso wokufundisa nge-pulmonary. umfutho wegazi ophezulu. Isenzo sizovulwa ngokudlala eWarsaw - ngoFebhuwari 28 kulo nyaka. 12-00 phambi kweMetro Centrum. Noma ubani onentshisekelo uzokwazi ukubona umbono wobuciko wokulwa nesifo owenziwe abadlali abavela ePuszka Theatre. Ngesikhathi somkhankaso, kuzosatshalaliswa amapheshana okufundisa kanye nama-lollipop amise okwezindebe eziluhlaza kuwo wonke amadolobha ashiwo ngenhla - uphawu lwalo mkhankaso, ngoba imilomo yeziguli iba nsomi.
I-pulmonary hypertension yisifo esiqhubekayo, esibulalayo esithinta amaphaphu nenhliziyo. Ibonakala ngomfutho wegazi ophakeme emithanjeni yamaphaphu. Izinga lokufa kwe-pulmonary arterial hypertension ngezinye izikhathi liphakeme kunakweminye imidlavuza, okuhlanganisa nomdlavuza webele kanye nomdlavuza wekoloni. Abantu abaphethwe yilesi sifo esiyingozi badinga ukwesekwa njengoba sithinta izici eziningi zokuphila kwansuku zonke, njengokukhuphuka izitebhisi, ukuhamba nokugqoka. Izimpawu ezivamile zalesi sifo ukuphefumula, izindebe eziluhlaza okwesibhakabhaka nokukhathala. Izimpawu aziqondile, ngakho-ke umfutho wegazi ophezulu wamaphaphu uvame ukudideka nesifo sesifuba somoya noma ezinye izifo, futhi kuthatha izinyanga kuya eminyakeni ukwenza ukuxilongwa okunembile. EPoland, abantu abangu-400 belashelwa lesi sifo.
Umxoxi: UHalina Pilonis